USEFUL ORGANISATIONS & CONTACTS
Let Them Hear Foundation
A non-profit organisation who provides free insurance appeal assistance
to individuals who have been turned down by their insurers for atresia
repair or auricular (ear) reconstruction with an experienced surgeon.
1900 University Avenue, Suite 101
E. Palo Alto, CA 94303, USA
Phone: (650) 462 3143
Contact: Sheri Byrne, Director of Advocacy
Annual Microtia & Atresia
Conference In USA
A conference concerning microtia treatment options is sponsored
by the Let Them Hear Foundation and held in Palo Alto, California,
USA. The conference is always the first Saturday in October. Conference
attendees will be able to see presentations on both medpor and rib
graft microtia reconstruction, atresia repair, prosthetics, jaw
distraction and Baha devices.
There are CDs containing computer playable
versions of last year's conference presentations, that are available
for a $25 donation (free if the $25 is a hardship) by calling 650
462-3123 or purchasing through Paypal at http://tinyurl.com/bq6r3
Internet Microtia & Atresia
With 900+ members from all over the world, this website provides
invaluable information and support to people with, and parents of
children with Aural Atresia and/or Microtia. As a member you will
receive daily emails with details of the days topics and discussions
and you can add your own questions or stories.
Changing Faces is a charity based in the UK that supports and represents
people who have disfigurements of the face or body from any cause.
Changing Faces' award-winning publications include self-help booklets,
children's fiction, leaflets, videos and information packs for professionals
across a broad range of subjects associated with disfigurement.
CEO & Managing Partner
CALIFORNIA EAR INSTITUTE
President and Founder
LET THEM HEAR FOUNDATION
California Ear Institute
1900 University Avenue
E. Palo Alto
Phone (650) 494 1000
Fax: (650) 323 7148
John F. Reinisch,
Director, Craniofacial and Pediatric Plastic Surgery
Dr. Sheryl Lewin,
Associate Director, Craniofacial and Pediatric Plastic Surgery
Cedars-Sinai Medical Group
250 N. Robertson Blvd, Suite 506
Beverly Hills, CA 90211, USA
Telephone: (310) 385-6090
Fax: (310) 385-6092
414 North Camden Drive
Beverly Hills, CA 90210
Microtia - Congenital Ear Institute
J. Arturo Bonilla, M.D.
Founder & Director,
San Antonio, Texas USA
A link to a document called
Bringing up a child whose face looks different.
It has been compiled by:
- Kristina Soon, Clinical Psychologist, Great Ormond
Street Children's Hospital
- Kathryn Ross, Clinical Specialist, Changing Faces
Overseas Department, Health Services Executive
Dr Steeven's Hospital
Phone: 01 635 2375 or 01635 2371
For information on means tested grants available for surgery abroad.
69a Main Street, Leixlip, Co. Kildare.
Phone: 01 2957125
- Everything you need to know about atresia repair
- Information about BAHA's from the manufacturer
Websites with other people's microtia stories
Occupational Therapy & Sensory Integration Centre