USEFUL ORGANISATIONS & CONTACTS

The Let Them Hear Foundation
A non-profit organisation who provides free insurance appeal assistance to individuals who have been turned down by their insurers for atresia repair or auricular (ear) reconstruction with an experienced surgeon.

1900 University Avenue, Suite 101
E. Palo Alto, CA 94303, USA
Phone: (650) 462 3143
Contact: Sheri Byrne, Director of Advocacy
Email: sbyrne@letthemhear.org

Annual Microtia & Atresia Conference In USA
A conference concerning microtia treatment options is sponsored by the Let Them Hear Foundation and held in Palo Alto, California, USA. The conference is always the first Saturday in October. Conference attendees will be able to see presentations on both medpor and rib graft microtia reconstruction, atresia repair, prosthetics, jaw distraction and Baha devices.

There are CDs containing computer playable versions of last year's conference presentations, that are available for a $25 donation (free if the $25 is a hardship) by calling 650 462-3123 or purchasing through Paypal at http://tinyurl.com/bq6r3

Internet Microtia & Atresia Group
http://health.groups.yahoo.com/group/AtresiaMicrotia/
With 900+ members from all over the world, this website provides invaluable information and support to people with, and parents of children with Aural Atresia and/or Microtia. As a member you will receive daily emails with details of the days topics and discussions and you can add your own questions or stories.

Changing Faces
Changing Faces is a charity based in the UK that supports and represents people who have disfigurements of the face or body from any cause. Changing Faces' award-winning publications include self-help booklets, children's fiction, leaflets, videos and information packs for professionals across a broad range of subjects associated with disfigurement.
www.changingfaces.org.uk

Dr Joseph Roberson
CEO & Managing Partner
CALIFORNIA EAR INSTITUTE
President and Founder
LET THEM HEAR FOUNDATION
California Ear Institute
1900 University Avenue
Suite 101
E. Palo Alto
CA 94303
Phone (650) 494 1000
Fax: (650) 323 7148

Microtia - Congenital Ear Institute
J. Arturo Bonilla, M.D.
Founder & Director,
San Antonio, Texas USA
Tel: 210-477-3277
e-mail: drbonilla@sbcglobal.net
web: www.microtia.net

A link to a document called Bringing up a child whose face looks different.
It has been compiled by:

• Kristina Soon, Clinical Psychologist, Great Ormond Street Children's Hospital
• Kathryn Ross, Clinical Specialist, Changing Faces

Overseas Department, Health Services Executive
Dr Steeven's Hospital
Dublin 8
Phone: 01 635 2375 or 01635 2371
For information on means tested grants available for surgery abroad.

Dyspraxia Ireland
69a Main Street, Leixlip, Co. Kildare.
Phone: 01 2957125
www.dyspraxiaireland.com

www.atresiarepair.org - Everything you need to know about atresia repair

www.entific.com - Information about BAHA's from the manufacturer

Websites with other people's microtia stories
www.microtiasupport.com
www.milestrip.blogspot.com
www.christie.typepad.com/reconstruction